Tag Archives: downs syndrome

Sometimes It’s Hard to Break a Bad Habit

There's been an article floating around Facebook the last few days and it prompted me to write this post. The article is at this link and is the response of a Special Olympian to one of the nasty social media posts by Ann Coulter. 

I try not to get too political on my own author blog, I do write for political blogs and those who know me know my political leanings. If you want to know I'm more than happy to discuss them with you but unless it has something to do with my writing, this website wasn't built to be a political site and really isn't the place for me to discuss these matters.

I do think Ann Coulter is a vile person and, even worse, a horrible writer who makes up facts to fit her viewpoint in the supposedly non-fiction books she writes. To me, this is unforgivable just from the intellectual honesty point of view.

But I digress once again.

The young man, John Franklin Stephens, saw a post where Coulter used the term "retard" when referring to someone. John has Down (or Down's) Syndrome and responded in a way that was as classy as it was possible to be. 

As my readers know, Noah Chance, of my books series of the same name, has Down's Syndrome and exhibits many of the same characteristics of John Franklin Stephens. As I've mentioned before, Noah was loosely based on a client I once represented and the first person with Down's Syndrome I had the good fortune to actually get to know.

Unfortunately, I still find myself using the term "retard" or "retarded", when referring to the actions of someone, without thinking about it. I do my best not to use it and I don't actually refer to people with Down's Syndrome that way but the term is still one I wish I could strike from my vocabulary. 

But it's hard to do.  If only good habits were as easy to develop as bad habits are hard to break.

If you get a minute, read the article and see how class really works.

Slavery, Civil Rights, and Self Discovery While Being a Writer

I'm very proud of the fact that, unlike many people I know, knew, like and dislike, I am a liberal/progressive at heart, I think we can and should do better than what we have done in almost all areas of our lives and our history, and that we must know our history so we can learn from it.

Born in Louisiana and raised there and in Texas, I consider myself a Louisianaian and a Southerner, and a Texan to a lesser extent. However, I do not like the direction my states have taken. Rather than the genteel (yes, genteel not gentle) outlooks on life and others I think the states and many of the more vocal residents have taken a turn for the worse, choosing rhetoric over action and choosing a viewpoint that dooms our region to take steps backward instead of forward.

I don't get into political discussions on my author website simply because this isn't the place for them. Sometimes the positions I take in my writings aren't my personal positions, the outlooks or sentiments are those necessary to advance the story. Certainly, you can often read between the lines and could likely discern my attitude on certain political points or, if you want to know, just ask me and I'll give you a personal response, but the author blog is where I share stuff about my books.

Over the years I've had to examine myself and my viewpoints on several occasions. When working on the first Noah Chance book, I was forced to consider the word of those born with Down's Syndrome and the people who love them and I quickly found that not only were my views outdated but they were also wrong in many ways because the information which caused me to form those views was incorrect. 

When writing The Bottle Tree I examined racism, the black and white divide, and why it seemed to be getting worse rather than getting better. My books are, so far, fiction and so it's incumbent upon me not to get too preachy in my novels and to try and keep them interesting while at the same time addressing issues that appear as the book develops. Johnny Robinson allowed me to do that in The Bottle Tree since I knew Johnny back when we were children and since he had appeared in my memories throughout my life. I only wish I had taken the opportunity to contact him again before he passed away and renewed the friendship which I hope would have rekindled. 

For the last year or so I've been working on a historical novel about Louisiana and, as a part of my research, spent a lot of time doing genealogical work tracking how my family came to be in Louisiana and why that is where I identify as "home" no matter where I travel or actually live. 

A number of my ancestors fought in the Civil War on the side of the Conferacy and, until recently, I could say they must have been fighting for the idea of the South since the census records didn't indicate any of them had owned slaves. I'm not ashamed of them fighting for the Rebels and anyone who says people should be ashamed of that fact simply don't understand the concepts which governed life back then or at least life the way they wrote about it in their diaries and journals.

However, in the research I did find that one of my ancestors did own slaves. Not one who was involved in the Civil War but rather one who has a more prominent place in history. Louis Juscheareau de St. Denis, the explorer who founded Natchitoches, the oldest settlement in the Louisiana Purchase, owned a number of slaves.

What is particularly interesting is that the daugther of the slaves he owned was Marie Therese Coincoin (Metoyer), whose freedom was later purchased by Claude Thomas Pierre Métoyer, with whom she had ten children. She and her descendants established the Creole community along the Cane River in Natchitoches Parish, including what is said to be the first church founded by free people of color for their own use, St. Augustine Parish (Isle Brevelle) Church, in Natchez, Louisiana.

So while slavery itself was wrong, the fact that St. Denis brought slaves to Natchitoches with him when he founded the settlement allowed for the creation of what is a phenomenal piece of history, the Creoles of Cane River. The direct descendants of Metoyer and Marie Coincoin still live along Cane River today and their culture and heritage is a vital part of Natchitoches.

As a side note, many people know my hometown of Natchitoches due to its most famous food Natchitoches Meat Pies which were once sold by cart vendors in town and which are still available throughout the area. The best I have ever eaten are made by the ladies at the very church mentioned earlier. St. Augustine Parish (Isle Brevelle) Church who sell them at booths at the Christmas Festival in December. Some even credit the creation of the meat pie to the Creole community although I haven't looked into the history of that yet.

All that to say that our history shouldn't necessarily make us ashamed, even when it is something that by modern standards isn't aceptable. Instead, it should be embraced and learned from, building on the good and avoiding the repetition of the bad.

Now, since many of you have mentioned that you like the recipes I post, a meat pie recipe that's sure to beat those frozen ones. This recipe is from www.Natchitoches.net.

Meat Pie Recipe

Meat Pie Filling

  • 1 teaspoon shortening
  • 1 pound ground beef
  • 1 pound ground pork meat
  • 1 bunch green onions, chopped
  • 1 pod garlic, minced
  • 1 bell pepper, chopped
  • 1 medium onion, chopped          
  • Salt, black pepper and red pepper to taste               
  • 1 tablespoon flour

Meat Pie Crust

  • 1 quart plain flour
  • 2 teaspoons salt
  • 1 teaspoon baking powder
  • 2 eggs
  • 1/2 cup shortening + 1 T
  • 1 cup milk

Instructions

Melt shortening in heavy pot.  Add meat. Cook until pink is gone.

Add vegetables and season to taste.  (Season well, as meat will lose seasoning during frying.)  When meat is completely done and vegetables glazed, remove from heat and drain excess liquid. 

Stir in 1 tablespoon flour.

Sift dry ingredients together.  Cut in shortening.  Beat egg and add to milk.  Work gradually into dry ingredients until proper consistency to roll. 

Break into small pieces and roll very thin.  Cut into rounds using a saucer as a guide.

To assemble:

Place a large tablespoon of prepared meat along edge and halfway in the center of round dough. 

Fold the other half over, making edges meet and seal with water. 

Form edges with fork. 

Drop in deep fat and  cook until golden brown. 

Drain and serve hot. 

Makes approximately  18.

Meat Pie

My Hero Has Down’s Syndrome

I have two series of books that I write. Well, since you have to have more than one book connected together to have a series I actually have one series and the aspirations (and a half written follow up) for a second.

The first series is the Junebug series based around the protagonist Junebug Walker. If you've read Junebug and the Body you know it is a nostalgic mystery with a lot of humor. It's set in the South, has a distinct southern slant, and I am working on the second book, Junebug and the Monkey, as the mood strikes me.

However, it's the Noah Chance series that I am blogging about today

Noah Chance is a young man in his early 20s who has Down's Syndrome and can see and talk to ghosts. He is the hero in both No' Chance and Second Chance, and hopefully we'll be seeing and hearing more from him as the books continue. 

I don't even remember now how Noah got his start, other than one day he and his two compadres were there in my mind, almost fully developed and just as you read about them in No' Chance. I didn't decide I wanted to write a book with a character who has Down's Syndrome, the character has it…because Noah has it.

I do know I was greatly influenced in my depiction of Noah by a woman I knew, let's call her Kay.

Kay was in her early 40s and had lived with her mother until the mother passed away, at which time she was placed in a group home by the state. In my other life I was hired by Kay's sister to file for guardianship over her, a guardianship which was opposed by the company who ran the group home and who, incidentally, received funds every month for providing Kay a place to live.

I had the opportunity to meet with Kay on one occasion with only her and the attorney (appointed by the court to represent her in the case). The other attorney was a friend of mine and sat in the corner and allowed me to talk with Kay for almost an hour. The meeting that day started when Kay entered my office wearing a bright floral design dress and a huge, wide brimmed hat with flowers on it. When she saw me for the first time she broke into a huge smile and rushed over to give me a big hug and thank me for trying to help her get to live with her older sister.

It was my first time interacting on an extended basis with someone who has Trisomy 21, the genetic condition commonly referred to as Down's and I left that day with the certainty that meeting Kay had benefited me much more than it had benefited her. I had never, ever met someone who I could say had no ulterior motives, hidden agendas, or anything other than an open and loving heart.

We did win her case and the last I heard, Kay was living in Portland, Oregon with her sister. For a while I received a card from her at least once a year and it always made me smile.